Tyra Young is in kindergarten and still sleeps in her parents’ bedroom — in a crib. She can’t walk. She barely talks. She can’t tie her shoes, but she likes kicking them off while sitting in her wheelchair, tethered to an oxygen tank. It makes her laugh. She laughs a lot, despite the chromosomal strikes against her. More.
Tyra, 5, has two rare genetic disorders with severe symptoms. Prader-Willi syndrome causes uncontrollable hunger, morbid obesity, respiratory problems and slow mental development. Velocardiofacial causes defects in her heart, face, growth and speech. “It’s a double whammy,” said her mother, Misty Young. “She wasn’t expected to live.”
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